So good to hear from you, Amanda. I'm really glad you were able to take some time out and do what you needed to do. It's a constant journey with a chronic health condition, and when you feel like you've got it all figured out, another layer comes along to complicate things.
I'm celebrating your wins with you, especially the tentative steps towards thinking about what you want from your future ♥
Thanks Ruth, I hope you've been doing ok too? Argh it really is a constant journey isn't it, I'm not sure I'll ever get used to the ever changing nature of the chronic illness beast but we try our best 😌 x
A little up and down lately. Some blood tests last week picked up very low iron, but I'm still waiting for the doctor to tell me what that means. It could explain some of my recent symptoms though. *sigh*
Oh this is so wonderful to hear amanda! I’m so relieved. Been thinking of you often and hoping (trusting!) you’re able to make a come back to healing through writing (reminder: you don’t have to be writing for anyone other than yourself and leaning in to the support of the community).
I can see so much healing happening in all you share here. Meeting yourself where you’re at. Getting clear on what you want/are able to do. Acceptance. Doing what you can when you can. Making space for yourself (possibly the hardest). Journalling down your experience, journey, symptoms, feelings. Making changes. Pulling it back. Gifting yourself permission! It’s incredible.
Thanks Amber 😄 when you put it like that it actually does show that I've progressed and now do allow myself to rest, although it often doesn't feel like it when it's all done so slowly over time, but thank you for the reminder 💕 ☺️ we need to celebrate these wins! x
It’s massive progress. But when you’re in a body that feels like it’s been brutally run over by a truck, it doesn’t of course, always feel like that in the day to day. And, yet, healing is happening💜 you can trust in that🌸
I hear you about unpredictability and being reactive to these different symptoms. It sounds like you've had to expend a lot of energy moving through all this. Sending warm wishes and hugs.
So good to hear from you, Amanda. I'm really glad you were able to take some time out and do what you needed to do. It's a constant journey with a chronic health condition, and when you feel like you've got it all figured out, another layer comes along to complicate things.
I'm celebrating your wins with you, especially the tentative steps towards thinking about what you want from your future ♥
Thanks Ruth, I hope you've been doing ok too? Argh it really is a constant journey isn't it, I'm not sure I'll ever get used to the ever changing nature of the chronic illness beast but we try our best 😌 x
A little up and down lately. Some blood tests last week picked up very low iron, but I'm still waiting for the doctor to tell me what that means. It could explain some of my recent symptoms though. *sigh*
Ah no, that must make you feel even more fatigued 😴 hopefully they will get to the bottom of it soon! x
Oh this is so wonderful to hear amanda! I’m so relieved. Been thinking of you often and hoping (trusting!) you’re able to make a come back to healing through writing (reminder: you don’t have to be writing for anyone other than yourself and leaning in to the support of the community).
I can see so much healing happening in all you share here. Meeting yourself where you’re at. Getting clear on what you want/are able to do. Acceptance. Doing what you can when you can. Making space for yourself (possibly the hardest). Journalling down your experience, journey, symptoms, feelings. Making changes. Pulling it back. Gifting yourself permission! It’s incredible.
Thanks Amber 😄 when you put it like that it actually does show that I've progressed and now do allow myself to rest, although it often doesn't feel like it when it's all done so slowly over time, but thank you for the reminder 💕 ☺️ we need to celebrate these wins! x
It’s massive progress. But when you’re in a body that feels like it’s been brutally run over by a truck, it doesn’t of course, always feel like that in the day to day. And, yet, healing is happening💜 you can trust in that🌸
I feel you! I sometimes stop writing because I feel all I am writing about is my illness. I'm also doing a biotherapy and side effects are fun! Not.
So I often art it out. Lately I created a whole booklet about my disease and the past 5 months of in and out of hospital.
I wish you peace of mind and healing.
https://www.instagram.com/reel/DHStgYDImAQ/?igsh=MWdpOTBmdXFwamY1NA==
Thank you Miranda. Creative outlets have definitely helped take my mind off things too thank goodness 🥰 x
It's good to read your latest, Amanda, hugs. xoxo
I hear you about unpredictability and being reactive to these different symptoms. It sounds like you've had to expend a lot of energy moving through all this. Sending warm wishes and hugs.
Thanks Victoria. I hope you've been doing ok? X 💕
Lots of appointments, we're doing ok - It's good to see more sunshine. We're in the limbo between scans and results, sigh. So, usual usual. xo
This is great 😊 I hope eventually the different new pains are chased away and only the positive effects of the meds sticks around.
Oh how I love your writing and missed reading you, albeit I completely respect the need for a break. We gotta listen to our bods.
I’ve also missed you on a Monday and hope to see you in healing through writing soon 💕